It’s not often I duplicate my posts over my two blogs, but this one is important to me:
For four years, my daughter and I have danced at Lake Area Dance Center. Over the years, we have gotten to know its owner, and primary teacher, Miss Maria, pretty well. We’ve also gotten to know a bit about a disease she has, Ankylosing Spondylitis (A.S.), that makes it painful for her to not only dance, but often do every day activities. Some days are better, and some days are worse. By the end of many nights, it is painful for her to even sit, as her spine gets inflamed easily. She continues to teach dance 7 days a week. Although she tries to hide her pain, I sometimes see her wince during our adult tap class, and I can see the brave face she is putting on for the sake of her students.
As of right now, there is no cure for this disease. Miss Maria takes a plethora of medications and vitamins every day to try to manage the symptoms. She has tried diet changes, juicing, and living a “healthy lifestyle” as many people like to tell her she should do. Nothing helps completely…
She has joined a team (of mostly women) from all over the country to help raise awareness of the disease. I have decided to join her in this effort. The way we are doing this is by joining a movement called “Walk Your A.S. Off.” Teams from all over the world are doing this virtual walk by logging our steps each day. The goal for our team, “Spondy Ladies”, is to walk 1 Million Steps in the month of April.
While fundraising is not required, I am of the opinion that awareness itself isn’t enough. Raising money to help researchers find effective treatments, and even a cure, is going to go so much further than walking and spreading the word about the disease alone!
You can help by joining our team, or by donating. You can donate a flat amount by clicking the link, or by giving me a check made out to SAA or Spondylitis Association of America, which I will mail for you. You can also pledge a certain amount based on the number of steps I take over the month, or a certain amount for making my goal (240K steps is my personal goal for the month). Donations are tax-deductible. Some employers may even match your donation!
Thank you for your support!
*Note: There are several S.A. organizations out there you could choose to donate to. SAA is the one Miss Maria chose, and I did as well. If you prefer to donate to a different organization that researches treatments and potential cures for Ankylosing Spondylitis, your support is appreciated. :-)